Thursday, April 21, 2011
No Steps Forward!!!!
The saying usually goes - one step forward, two steps back. well this time it doesn't even seem like we are taking any steps forward. I'm thinking somebody forgot how to walk :)
Home health nurse coming again in the morning for dressing change. I was also to the doctor on Monday and they ordered some more blood work so I need to get that done sometime this week. I may get that done tomorrow at Geisinger.
I still haven't heard anything regarding the job interview I had last Monday. I'm still hoping, but everyday that goes by and I don't hear anything my hopes go down. If I don't hear from them I'm thinking about looking to see if I can find anything else that would work with all my restrictions and such. I was hoping to get back to work with at least one week left on my FMLA, but that isn't looking too promising. I wanted at least a little time left so that when I started in the new department if I had to take off for any reason I would still have some time left. If I use all my FMLA I don't know what they will use for my doctor appointment and such since I will have no time whatsoever.
Taking it one day at a time!!!
Wednesday, April 20, 2011
It Will Be Worth It All!!!
I often lose sight of the end goal when problems in my life are right in front of me and that is all I can see. I go through life looking straight ahead as far as I can, but when problems in my life are so big I can't see very far ahead. I look at my feet and I can't see to even take the next step. It's so dark and I wonder if there is even ground underneath the next step. That is when I need to realize I shouldn't even be looking down or straight ahead but I need to look up because that is where I will find the help, the strength and wisdom I need to go on. I need to get my focus off my problems and focus on the goal, which is Jesus. Maybe God puts big huge problems right in front of us to remind us where we need to be looking - up!!! We need to look up to Him and trust him that there is ground underneath our next step and we just need to have faith in him.
I need to look at this trial as a stepping stone and see what growth and benefits I can get from it. I don't need to look at it as a valley but as something to build me up. Not looking at it as, am I ever going to get better, but look at it as what can I take from this. How can I use what I am going through to help others?
Yes, this was a lot easier to type than it is for me to actually try and do. With God's help though I will take this season of my life and make the best out of it.
Taking it one day at a time!!!
Monday, April 18, 2011
Tired of Going Nowhere!!!! (Let me Vent)
I guess one of the hardest parts for me is to not know how things are going to turn out. I wish somehow somebody could just tell me the end result. Tell me if I will eventually get better or if I will stay like this or if things will just get worse. I know nobody can do that, but being in limbo with no important doctor appointments or procedures, just gets tiring. Nothing new being scheduled to try and see if there is anything that could possibly help me get better.
It has been going on 2 months now since I have been to Temple. To me it seems like I'm not one step closer to anything new than I was months ago. I call Temple every Friday to check and see if I am any closer to getting things moving again. This past Friday I didn't get to speak with anybody so I just left a message and I still haven't heard anything back from them. I'm thinking about calling the insurance company tomorrow to see if they have anything different to say. If not, I know somebody who has offered to go up the ladder and see if the people they know can get anything moving.
Lately I feel like my faith (what little I had) is slowly slipping away. It seems like God will/can help anybody else, but me. I realize we all go through what we go through because of what God might be trying to teach us, show us, or mold us. It just gets hard when your in the middle of it and you can't see any light on either end of the tunnel. I still know the reality that God has not neglected me or forgot about me, but it's easier to sit here and type it than to actually feel it.
Sorry to vent, but it's been awhile since my last "let me vent" post and tonight seemed like a good night to do that :)
Taking it one day at a time!!!
Reality!!!
There will be bad start days with bad end days.
There will be good start days with bad end days.
There may even be bad start days with good end days.
But there will rarely, if ever, be great start days and great end days.
That unfortunately is reality for me. Hopefully if Temple and the insurance will communicate and get on the same page, maybe reality for me can change.
Three important prayer requests from me for this week:
1. That there will be progress with Temple and the insurance.
2. That I would get the job I interviewed for.
3. If I get the job, that the doctors will release me to go back to work soon.
Will keep you posted through the week.
Taking it one day at a time!!!
Friday, April 15, 2011
Bad Day!!!
I did leave a message with Temple asking for an update with the insurance company, but haven't received a call back yet.
Taking it one day at a time!!!
Thursday, April 14, 2011
4/14/2011
No word on the job interview yet, maybe tomorrow (I'm hoping)!!!!
It was a beautiful day today. I was able to spend time outside, loved it!!!!! Hoping for another nice day tomorrow.
Dark as Night!!
That all we can see is our tears
And our days are dark as night.
When all it does is rain,
And we wonder if anybody hears
That we feel like we're losing the fight.
Is there anything to gain?
Can anybody calm the fears?
Will we ever see the light?
We must remember the one who loosed our chains,
As the end of our lives and eternity nears
And imagine what a glorious sight.
Wednesday, April 13, 2011
4/13/2011
I sill haven't heard anything back from Temple. I'm so tired of nothing happening.
My dressing changes are now going to be every three days. They want to keep an eye on the site since it wasn't looking too good last time. They will be coming tomorrow morning to do it. It's also time for them to recertify me, they have to do that every 60 days, so they will be doing that tomorrow also.
Hoping to soon hear something about my interview!!!
Trying to take it one day at a time!!!
Tuesday, April 12, 2011
The One Who Holds My Life!!!
Monday, April 11, 2011
Nurse visit 4/10/2011
Today was time for another home health nurse visit. My PICC site isn't looking to good. They are trying a different dressing to see if that helps any.
I had blood drawn which also proved to be quite the challenge. The nurse had some trouble accessing the mediport, but was able to get it on the third or fourth try.
No news from Temple today.
Taking it one day at a time!!!
Interview
I had my interview today. I won't hear anything for a couple of days now. All I can do is see what happens. They offered me to stay and shadow so I did that for a couple of hours after my interview. It looks quite confusing at first but hopefully that clears up with time. Will explain more about the job of I actually get it.
Friday, April 08, 2011
My Mountain's A Hill
I may think I'm never going to get through this mountain, I'm never going to get to the other side, and I'm never going to come through this situation. The hardest part is not knowing. I don't know what lies ahead. I just have to realize and trust God that even through my problems, through my mountain which seems so big. So big that I have no idea how I'm going to ever climb this mountain. I just have to realize that this mountain is just a hill, from heaven's point of view.
It gets frustrating for me to be seemingly in limbo. No important appointment scheduled. I'm just sitting around waiting to get some Temple appointments scheduled. Nothings changing...it's the same old, same old...... I know that God is the only one that knows my future, but it's hard for me not to know some things. Am I ever going to get off the TPN? Will I be on it for the rest of my life? Is Temple going to be able to help? Am I going to be like this from now on?
I want to make plans with my life and try to have goals. It's hard for me to just go from day to day, week to week, and month to month with no changes and no plans to help things change.
I just have to remember that the most important things in life!! That this mountain may be bigger than Mt. Rainier in my eyes but With God's help and his teaching, I'm going to climb this mountain one way or another. Which actually is just a little hill from heaven's point of view!!!!
Taking it one day at a time!!!
Thursday, April 07, 2011
4/7/2011
The job I'm interviewing for is a desk job which is just what I need right now. I am sad that I can't do actual floor nursing for awhile but this is the situation I'm in right now. Hopefully one day I can return to SCU3 and work again but for now I'm happy that they are helping me and found me something that I can do in this current situation.
I tried calling Temple today to see what the hold up is but I just got the answering machine. I left a message and will try calling them tomorrow. I just am getting so frustrated with this waiting game.
Taking it one day at a time!!!
Wednesday, April 06, 2011
Job Update!!!
Friday, April 01, 2011
Phone calls update!!!
Now for the Temple and insurance situation. I called the insurance to see if they received the paperwork and if it was approved/denied. They acted like they didn't receive any paperwork, but that I didn't need any. They said Temple was cooperating with them and that I could just go ahead and do what they wanted done. So when I called Temple to schedule the appointment I got a totally different story. I guess I was the second person that day to call and say that, but they hadn't heard that from the insurance company. So they are going to have to look into the situation further. So now I have to wait to hear back from them.
So hopefully they will soon get the straightened out and get my appointment scheduled so that things can move along.
Taking it one day at a time!!!
4/1/2011
I need to call Temple and/or the insurance company to see what is going on with the requests. It has been 3.5 weeks now and I haven't heard a single thing. The doctor on Monday ever so nicely mentioned that Geisinger does all the tests and procedure that Temple is wanting done but that he didn't think they would be beneficial for me! Are you serious? Annoying!!!
My boss at work told me that I will be placed on extended medical leave once my FMLA runs out. So I have to call HR and get some questions answered and see what all needs done to get that ball rolling. I just hope I can keep my job and my insurance. I don't know what I would do if they didn't hold my job and I lost insurance.
Hoping things work out!!!
Taking it one day at a time!!!
Wednesday, March 30, 2011
3/30/2011
Sunday, March 27, 2011
3/27/2011
I have another GI appointment on Monday, so I'll let you know how that appointment goes on Monday night. It's with the doctor at Geisinger that gets me pretty frustrated sometimes. So I guess we will see how it goes.
I still haven't heard anything from Temple regarding the insurance approval/denial. This Tuesday will be 3 weeks so I think I should soon be hearing something. If I don't hear by the end of the week I might give them a call and see what the scoop is.
A different home health nurse will be coming on Monday. I hope she is nice and knows what she is doing :) I think I will only be getting a dressing change. I don't think they are drawing labs this week unless they want to check my electrolytes since I am now only doing TPN every other day, but I doubt it.
Today is not a very good day. I thought last night I might have had a little fever and than today I'm in a lot of pain and feel lousy. So I will definitely be taking it easy today.
Taking it one day at a time!!!
Sunday, March 20, 2011
3/20/2011
Not much has happened since the last post therefore no posts. I am just hanging in there and doing the best I can. I still am on TPN with no talk of stopping it soon. Tomorrow the home health nurse comes to do dressing change and to draw blood. I have an appointment with the nutrition doctor on Friday and then the next Monday I have a GI appointment at Geisinger.
I'm still waiting to hear from Temple regarding the insurance company's decision about the tests and procedure they want done. This Tuesday will be 2 weeks since the appointment and they said it would take 2-3 weeks, so maybe I will hear something this week. I haven't heard anything about the blood work that was drawn either (maybe that means it was all normal.)
I've been trying to get out a little and enjoy the warmer weather. We had a couple beautiful days this week with temperatures near 70. Can't wait until the weather gets warm and stays warm. I love to just sit outside and soak up the warmth and the sun. The best natural way to get my Vitamin D that I am really low on :)
Will try and do better with updating this week.
Taking it one day at a time!!!
Monday, March 14, 2011
3/14/2011
Today was not a good stomach day. Have been nauseous and sick almost all day. Didn't sleep very well last night so I'm checking in early tonight to see if I can get some rest.
Taking it one day at a time!!!
Friday, March 11, 2011
Fridays' Floods
Check out the photography tab for some photos that I took today of the flooding at my Pap's house along the Susquehanna River.
Taking it one day at a time!!!
Thursdays' Thunder
Well, I guess we really didn't have thunder today just the rain. I'm thankful that we don't live near any bodies of water and that our basement is dry. I feel bad for the ones out there where that is not the case.
Nothing exciting happened today. It was just a weary, dreary rainy day. I did get some good news from work. My boss emailed me and told me that once my FMLA runs out that I will then be put on extended medical leave. Hopefully I don't get to that point, but it is a little load off my shoulders.
Now I just have to wait to hear from Temple as to whether or not the insurance approves the tests and procedures. They will call and let me know and if approved we can then schedule the appointments.
As of now my next GI appointment is at Geisinger at the end of the month. It's with my primary doctor I had been dealing with before going to Temple. I don't really care for him anyways, but I'm just concerned that what he may want to do or try (not like he does anyways) will interfere with the Temple doc. In my opinion Temple is calling the shots now and I know last appointment he was mentioning some different tests to run just because. Oh well, time will tell. Hopefully I will have heard back from Temple by then and it won't be an issue
Taking it one day at a time!!!
Wednesday, March 09, 2011
Temple Appointment!!
Yesterday I had my appointment at Temple. The doctor is a lot older than the picture on the Temple website looked. Based on the picture I thought he was a younger doctor. Overall, the appointment went fairly well. I didn't walk out disgusted like I have with some other GI doctor appointments. I do have to say he is a little forgetful. I was in his office with him for over an hour just going through my chart and asking a bunch of questions. That is all that happened at the appointment. A bunch of questions and reviewing my chart he had to get the whole story on what's been going on for the past 5 years. I may have been on the exam table for 1 min, not quite sure if it was that long. At least he realizes how things are and thinks that things need done. I'm hopeful that good things will come out of seeing him and going to Temple.
He wants to do lots of blood work which I can get done at Geisinger or through my home health nurses. He wants to do a smart pill study which is where I swallow two pills and then I wear a receiver which tracks and records what the pills do for the next 5 days. After 5 days I go back and they will do an x-ray and then they want to do an anorectal manometry. That test I don't think will be too fun since its involving enemas - enough said. He also wants an EGD, esophageal manometry and Botox injection. Those can all be done in one procedure during the EGD. I'm sure your wondering what the botox injection is for and what it does. They inject botox into the valve between the bottom of your stomach and the small intestines. The botox keeps the valve partway open with hopes that it will allow the stomach to drain. All of the tests besides the blood work are pending approval of insurance which they said will take probably 2-3 weeks yet and then they can schedule the appointments if they are approved. I definitely don't have much faith when it comes to the insurance approving all of this especially since the botox injection is still experimental. He did say I would be a good candidate for the pacemaker except the fact that I am so young. If that is the only option left though he would do it. He did tell me though that there may be nothing that he does or tries that will help me.
I guess I will be on TPN awhile longer until we can figure something out or unless one of these procedures work. When he first met me and started going through my story he did ask me if there was one thing he could fix what would it be. None of my other doctor have asked that before.
I was hoping to soon be able to get back to work but I guess it is a little unrealistic right now, especially for the work I do. Maybe they will be able to work with me and have paperwork or something like that I could do for a couple hours a week. I'm just worried about using all my FMLA time and losing my job which would result in losing insurance and I don't even want to go there or think about that yet.
I just have to remember that all things work together for our good!!!
Taking it one day at a time!!!
Sunday, March 06, 2011
Temple Appointment Almost Here!!!
This is going to be an exciting week, hopefully in a good way! Hoping to get the ball rolling come Tuesday to see what can be done and what needs to be done. I have started writing a list of questions to ask the doctor, so I'm prepared. I even asked Mom to come up with some questions that she would like answered. I haven't decided if I'm having her go into the room with me yet or not. I tend to not be assertive and let that up to her when she is in and then it seems like I hardly talk then. It's not her problem, it's mine. I just have a harder time talking when she is there. So, I want to be prepared either way. If I have her questions and I decide to do it on my own I can still get her questions and worries answered too. At least she is going along to provide support. If the appointment goes horrible I will have somebody to listen to me rant and rave about how awful the doctor was and how frustrated I am. She is used to that :)
A part of me is hopeful but another part of me is scared that it is going to be the same thing I have experienced other places. I'm praying that this won't happen and that it will go well.
Tomorrow is the day for blood draws and dressing changes again. The same nurse that has been coming is back again. Yay!!!
Today is not such a good day. Mom always does a nice homecooked meal on Sunday and her dad and brother come over. I tried some mashed potatoes and it didn't go so well. So I'm regretting that decision now. Stomach already protested and now I'm just dealing with the lingering nausea and pain. Oh well, hoping that will soon change with help from Temple.
Taking it one day at a time!!!
Friday, March 04, 2011
Flu, Flareup, or Both? - 3/4/2011
Thursday, March 03, 2011
3/3/2011
Wednesday, March 02, 2011
Wednesday Whims!!!
I also recently had to renew my nursing license. They nursing office at work has been emailing me to send them a copy so I faxed that to them today. Stupid me though forgot to sign the license so I have to fax it again today.
I was up again half the night, as you can tell by what time I posted the poem early this morning. As soon as I do settle down and either just about asleep or having just fell asleep, our two dogs start barking. That makes it really hard to go to sleep then. I'm hoping for a better night sleep tonight.
Taking it one day at a time!!!
God's Big Plan
It is back and forth from here to there
Tuesday, March 01, 2011
Thoughts for Tuesday - 3/1/2011
I received a call from the GI doctors office that they had made copies of some of my paperwork to take down to Temple with me. So I ventured out to Geisinger to pick them up. Made for a tiring day, so I'm hoping I can sleep good tonight.
It was a fairly nice day out so I decided to get my nice car out of hiding a take it for a spin to go pick up the paperwork. It was nice being able to get out of the house for a little bit and enjoy some sunshine.
Something about Geisinger that doesn't quite make sense. Geisinger is a hospital which means that is where sick people go, right? Well then, why do they make the parking so far away? If your sick you probably aren't going to be able to walk that far to even get in the hospital let alone once you are in it. It just doesn't quite make sense to me. If you do make it inside the hospital, then you have another mile to go to get to your destination.
Tomorrow I will be making some phone calls to Temple to check and see if they received any paperwork from Geisinger, and to see what all I need to do if they didn't. I started today and Geisinger acted like they haven't sent anything and weren't planning on it. So I need to see what is going on with that tomorrow.
Taking it one day at a time!!!
New Address!!
Monday, February 28, 2011
Monday Meditations - 2/28/2011
A week from tomorrow I'm going to Temple. I really hope something good comes out of it. I joined a support group and have been able to talk with a couple different people who have went to Temple. Some have had positive things to say and some were not so positive. Sometimes it's hard for me to be positive because I don't want to get my hopes up and be really disappointed especially the way things have been going. From what I've heard, it will just be a visit where he goes over my chart and my history and orders a couple tests to be done. Some say they may do some blood work while I am there, but the other tests sound like they will be outpatient and that it takes a couple weeks sometime to get them scheduled. I was hoping we could get things moving a little faster.
As humans we want things done now. I don't want to just keep sitting at home on TPN for weeks/months to come. I need to get better so I can get back to work. I have already used up 1 of my 3 months I get for FMLA. So I am hoping it won't take too long to at least get the ball rolling toward answers and treatment.
I know that God's timing is the best so I will try my hardest to rest in that fact and let things happen as He allows them to.
Taking it one day at a time!!!
Sunday, February 27, 2011
2/27/2011
Nurses are coming tomorrow to do blood work. Hopefully everything will be within normal limits. I'm pretty sure the same nurse is coming tomorrow that was here on Thursday. That's a good thing.
Taking it one day at a time.
Saturday, February 26, 2011
Snippets from Saturday
I decided last night that I would take a stool softener to see if that helped move things along better. The doctors have a liquid prescribed that I can either put through my J-tube or take orally. I thought I would just try to take it orally. I didn't realize this until after the fact, but you are supposed to dilute it in 6-8 ounces of water. I decided to just take a swig or two and be done with it. That was a bad mistake. I took one little sip, and I couldn't breathe. Literally, I couldn't breathe in or out. It was horrible. I was gasping away and when I started to be able to breathe the tiniest bit I was only able to breath in, I couldn't breathe out. I thought it must have just went down the wrong tube but then when I read the bottle I realized that it didn't. There is a warning to dilute the med or it can cause severe throat irritation. It literally took my breath away and I couldn't breathe for a good little while. Needless to say, it made me quite sick after that and I won't go into details there.
Today was an alright day. It could have been better but definitely could have been worse. Basically as long as I am alive I have to realize that things could be worse and to be thankful that I am alive. I would not pick to be where I am right now, but it is where God sees fit for me to be and I have to accept that. I may not like it, but in reality there is nothing I can do about it anyways so I might as well try to make the best of it. Easier said than done, but I need to try and find the positives in it.
Taking it one day at a time!!!
Friday, February 25, 2011
Feelings for Friday
Nothing exciting happened today. Just taking it easy and relaxing, since that's all I really feel like doing. I may have to drag myself out of the house tonight to get some errands ran and to pick some things up. I'm dreading it though just thinking about it, which is so unlike me. Usually I'm wanting to do anything to get out of the house for a little bit. I usually don't like being stuck at home with nothing to do.
No more doctors appointment now until my appointment at Temple in March.
Praying things work out at Temple. It get discouraging sometimes when you look back at when things started and where things are at today. Not much progress has been made when you actually think about it. There are really no new answers. I've heard plenty of maybe it's this, or maybe it's that, but the general consensus has always been the same. So hopefully Temple will be able to get things moving and get some definitive answers and treatments.
Taking it one day at a time and trusting in God that He sees the big picture!!!!
Thursday, February 24, 2011
2/24/2011
Home health visit went well. I really liked that nurse that came today. Since my mom had used to work for the agency that came I have known the nurse for a few years so it was nice having somebody come that I actually knew. She remembers from 5 years ago when I first started getting sick, so she knows what I have been going through and dealing with. She will be coming back on Monday to do my blood work.
I have been having horrible nights of not being able to sleep. I'm in bed now and if I start getting tired enough that I think I can sleep I'm going to take advantage of it even if it is early. At least I worked night shift so when I am up all night I at least can text or call friends from work which helps the nights go faster.
Taking it one day at a time!!!
Wednesday, February 23, 2011
One of Those Days!
Since I have not been working I fear that in the time away I will either lose some skills or just become rusty on how I functioned and performed as a nurse. So, I thought I would try something new to keep "up-to-date" on current medical issues and the such. I started reading current research articles and new medical news and so far I have found it quite interesting. I figure since I am not working right now to learn by experience, which I think is the best way to learn, that I would try and do the best I could to stay current and in the loop so to speak. So far, I am enjoying what I have been reading and learning.
Tomorrow will be a more interesting and tiring day. I have a 9:30am appointment at Geisinger with the GI nutrition doctor. Around 1:00pm home health nurse is stopping by to do vitals and my PICC dressing change. It may not sound like a busy day to most of you, but for me I will probably be really tired by the end of the day.
Tuesday, February 22, 2011
2/22/2011
Good news is that the biopsy reports came back fine as far as we can tell.
Nothing else new to really report except my frustrations with this particular doctor. He hears what you tell him but he either doesn't understand or he actually isn't listening. He seems very skeptical of everything you are telling him about what is going on and your symptoms and what they told you your tests showed while in the hospital. Then he gets in your charts and ends up reading what you just told him aloud from the actual test results. So annoying. It's like since he can't figure it out it must not be really happening or true. It almost seems like he is stuck in a box and so we have to keep trying the same medications over and over again and the same everything that is in the box 20 times with the same results. If they didn't work the first or even the second time maybe it is time to look outside of the box. At least he did admit he wasn't following me as closely as he should have been. You can't keep track of how somebody is doing with their problems unless you see them and schedule return appointments. So don't wonder how things can get so bad if you haven't been seeing them at all. That's just a couple of the things that really got to me today when I saw him and built up from some past visits with him. I could go on yet for awhile but will leave it at this. Maybe another time and another post. We'll see.
I haven't been sleeping well at all and after the long day I had today I think I'm soon calling it a night. I get really wore out by just going to the doctors.
Looks like I have another appointment on Thursday with the GI/Nutrition doctors that were following me on the TPN in the hospital. Also, Home health is also coming on Thursday to do my PICC dressing change.
Taking it one day at a time!!!
Monday, February 21, 2011
Let Me Vent!!!
Upon discharge from the hospital everybody assumes you are doing better. Why wouldn't they? I totally get it. I'm sure I would be assuming the same thing because that is how things work. You get sick, go to hospital, start getting better, go home. That's how things work. Well, not so much the case in my situation. I was discharged home because there was nothing else they could do for me, and what they were doing I'm able to do at home. So there is no point keeping me in the hospital when they can't do anything more for me. So therefore I was discharged home to be followed by nurses until I can get to Temple. To keep hanging in there till I get to Temple to see if there is anything they can do there. They offer different tests and surgeries that may be available. What they are doing for me right now is not necessarily going to help me get better or feel better, it is just to keep me from getting any worse. At this point I wouldn't be able to handle getting worse because I'm already not good.
I guess the point that is frustrating to me is that people assume things are better or getting better when they're not and I don't have the heart to tell them that things actually aren't really any better. (I'm such a sucker.) Instead I just either agree with them or answer some generic response that can be taken however they want it to!
Well now that this is off my mind, I'm going to bed. Good night all!!!
2/21/2011
I did receive a call from the pharmacy that reviews my labs to see if the "ingredients" in the TPN need adjusted. I guess they may have been a little off so they are going to be making some adjustments. I should be getting a delivery of all my supplies tonight yet with the updated TPN.
A case manager from Geisinger called to check up and see how things are going. She will be checking up on some of my follow-ups that I think got lost in the discharge process. They will be calling every Monday morning for 4 weeks to keep checking up on me and make sure I am doing alright.
Update: Case Manager just called back and I now have an appointment tomorrow with GI. It was scheduled for the 28th from the first admission but when discharged this time they had wanted me to be seen in 3 days. I hadn't heard anything so I just figured I would still be going on the 28th even though it was over a week away. Well, I guess she looked into it and so now I go tomorrow.
Taking it one day at a time!!!
Beautiful Morning!!!
Sunday, February 20, 2011
2/20/2011
One things I've noticed is that everyplace does things a little different in regards to mediport access. I know how Geisinger does theirs so I just figured that was they way it had to be done. Apparently that is not the case. I'm not sure if the nurse I had today had ever even accessed a mediport before. It was a learning experience for both of us. I was able to tell her how I've watched it be done a Geisinger and then she followed my lead. One institution may do things one way while the other may do things another way. At least she was a nurse that didn't mind me telling her how it was done and how to do it, but I think most of that was because she really truly didn't know. All in all though, it went well and she was able to get the blood drawn. Hopefully the results will be good and I won't get a call saying otherwise. She wasn't sure what day the nurses were coming next. So I guess it will be a surprise.
I'm probably going to spend the afternoon resting and working on my pictures. I think I am going to try and get them organized. I also received a coupon from when I bought my new camera to get a photo book. So I may work on getting that put together so I can get that ordered this week. Maybe I will find some pictures I had forgot about or slipped through the cracks that I will feel like posting on here later today.
Taking it one day at a time!!
Saturday, February 19, 2011
2/19/2011
Tomorrow the home health nurse is coming to do some blood work and an assessment. Shouldn't be too bad. The worst part of that will be them accessing my mediport. It doesn't really hurt it just gets sore from the needle going in and out every couple of days. It doesn't give it much time to heal in between sticks. I'm interested to see my blood work results though, but I doubt I will get to see them anyways. Maybe they will be able to get me copies if I beg.
Well, I'm soon calling it a day. Good night!
Special Delivery!!!
Friday, February 18, 2011
2/18/2011 (evening update)
I did enjoy getting to sit outside for a little and watch my dog play. It was a beautiful day outside. I'm glad I wasn't stuck in the hospital on a day like today. I'm ready for spring and summer to get here. I think today was just a teaser though for spring. It sounds like its going to get pretty cold again in a couple of days.
I was able to see and talk to my sister and my nephews on skype a little tonight. That was fun. I really miss them being gone and not being able to see them. I was able to see Parker crawl for the first time. He is getting so big. It's hard to believe he will be 1 year old in April. It seems like he was just born and we were in Ohio seeing him for the first time at IHC.
Taking it one day at a time.
Lucky - 2/18/2011
2/18/2011
Home Health nurse was here around 10:00. She had some questions to ask and some paperwork for me to sign. Since I am a nurse it went quick and she was done within the hour. She told me I would be her easiest patient of the day as in independence but some were healthier than me and still required more care. The next visit is Sunday and they will be doing blood work then to make sure all my electrolytes are still normal.
Thursday, February 17, 2011
2/17/2011 (8:30pm update)
At 7:30 the home health nurse came and did my vitals and helped me get my TPN set up for the first night at home. Since I am a nurse it was easy and I did most of it by myself. I guess tomorrow a nurse will be coming and actually doing an admission, and from what I hear it takes about 2 hours. Sounds fun!!!
I have a primary care physician follow-up appointment on Monday and hopefully tomorrow my GI follow-up appointment will be scheduled for early next week. The biopsy results will go to my GI doctor. So I will either find out at an appointment or will be called with the results. I'm not sure how many days it will take to get the results.
Well, I think I'm soon heading to bed. It has been a long day.
2/17/2011 (4:00 update)
My main doctor was just in and said I can go home. So now I am just sitting here waiting on my paperwork to get done.
I will be having lots of follow-up appointments throughout the next couple of weeks and waiting for the results of the biopsy.
Home health should be at my house to see me yet tonight and also the pharmacy that is supplying everything. So will probably end up being a busy evening.
Hopefully I will be able to post another update this evening after all the home visits and teaching are done.
2/17/2011 (9:00 update)
2/17/2011
Per nutrition I can go home today, and also I know the primary team said yesterday that I should be able to go home this morning. So, we will see how everything turns out today.
I am a little nervous to hear what the GI doctors have to say about the procedure yesterday. Some have said a little bit and it has me a little worried.
Will post updates as I can.
Wednesday, February 16, 2011
2/16/2011
8:00 - Procedure is done and I am back in my room and awake after a couple hours of sleep. I haven't heard anything from the doctors yet about what they found if anything.
Will try and keep you posted as I find out.
Tuesday, February 15, 2011
2/15/2011
Primary doctors were in and wanted to discharge me. The concerns that I have and also the nurses concerns were discussed with the doctors. They set up a plan and discharge papers were ordered. IV team came to de-access my mediport. Right at that time, GI doctor was in with the results of CT scan and stated that they had found something on the CT scan and wanted to do a procedure to remove/see what this was. They wanted to do it today, but then I told them I was being discharged and my discharge papers were already done. So then the GI doctor decided that I could come in tomorrow morning as an outpatient and have it done.
The problem with this by me and the nurses went along with some of the concerns we had earlier. My blood pressure started running lower last night and today and upon discharge I wouldn't be getting as much fluids as I was in the hospital. We were concerned then, that I would be right back in the hospital in a couple of days. Also with this procedure they wanted to do it under general anesthesia due to what all they wanted to do when they are down there. I don't do very well sometime with anesthesia and we were concerned that I would go home today, have the procedure tomorrow and be readmitted again to the hospital. So after many phone calls, the conclusion is that I will not be going home today and I will find out later exactly the details of when the procedure is.
Mediport was accessed again and fluids were once again started. TPN gets started around 6:00 and will be cycled again through the night and til 8:00 in the morning.
That will probably be all the excitement for the day. If anything else interesting happens will be sure to update if I can.
Tomorrow will be the procedure but I have no idea what time that will be. Prayers appreciated. It is a little concerning thinking about what it could be they saw. The way things go with me they won't even be able to find what they saw and we will be right back where we started.
Monday, February 14, 2011
CT Scan
They give you 36 ounces of nasty tasting stuff to drink. Which for an average healthy person is not good but they are able to manage to drink it for the test. Well, now try giving that to a very sick person who vomits when she has been NPO (nothing by mouth) for 5 days. So I try and start drinking this contrast. I'm not a very big drinker to begin with so seeing a big bottle of contrast to drink is not appealing. I am nauseous before I ever start drinking and so I try and start sipping. They want you to drink 12 ounces over an hour. May not seem like a lot to an average person, but to a sick person it is A LOT. The nurses and I from the beginning figured I would just do the best I can to get as much down and not push it. We figure that keeping some down is better than trying to drink it all and vomiting it all back up. So I start drinking and by the time for the scan I only have a little over a cup down. I can't handle anymore due to the pain and the nausea. Well the doctors decide that I have to have all of it for the test. They wanted the nurse to put an NG tube down so they can give me the rest of the contrast. Well, that's stupid because I have a G-tube. So they order some morphine to try and control the pain even though they knew it would still be painful and uncomfortable and after the morphine is in they want me to put the rest of the contrast through the tube. So that is what we do. I'm so nauseous and uncomfortable it's ridiculous. I can't hardly talk because if I do I'm going to end up vomiting. I have a nursing student with me today, which I don't mind because I was in their shoes before. But, when you really don't feel good and then they start messing around and doing things that don't necessarily need done it gets annoying. So I manage to make it to the scan and get that done. Get back to the room and am then able to drain the contrast via the G-tube which was it's original purpose (to drain the stomach when nauseous).
So glad that is over with. I hope they may get some answers from it and that it wasn't all for nothing.
2/14/11 Update
Also I'm having a CT scan tonight at 6:30.
2/14/2011
After replacement, my labs looked much better. Still on the low side but much better to normal. So they made some corrections to the TPN that started last night and are hoping my labs are still normal when they check them again in the morning.
They are hoping to be able to start cycling the TPN tonight. So that I just receive the TPN for 14hrs out of the day. It would run then from 6pm to 8am. If they are able to do that they are talking about sending me home shortly thereafter.
They did consult the GI doctors again to check on some things. I woke up last night at 4am with severe abdominal pain, nausea, and diarrhea. They had been wanting a CT scan but it had not been done yet, so I was asking about it today and GI was just in here and did an extensive history from when this sickness started. They are going to discuss it with the whole GI team and see what conclusions they can come up with and see what tests they want run. So I figure if they are wanting some more tests run I still may be in here a couple days yet.
I find it kind of comical though. Sometimes a nurse or aid will come hurrying into the room and just say "I need to get your blood pressure." They take the blood pressure and then they leave. That has happen only a handful of times, but I found out they are doing that because of what they are seeing on the heart monitor. My primary doctors told me that I had an episode of VTACH last night. The other times I found out my heart rate would go into the 140's.
Will try and post an update once the doctor are back in and have discussed and thought of a plan,
Sunday, February 13, 2011
2/13/2011
The plan is to go home with TPN and just wait to get into Temple. They have specialized testing and programs and surgeries they can do that may help me. This hospital basically told there is nothing more they can do for me here, so we just have to wait to go to Temple. Hopefully that could be soon. The sooner the better in my book.
I missed Lucky's 1st birthday this week. I was sad about that. Hopefully I can see her tomorrow.
Will try and keep you all posted. (Not sure if I have any readers anymore, LOL) I just checked my traffic report and have had 0 visits in the past week.
Pray that I can go home soon and be able to get into Temple fairly quickly, Thanks so much!!!
Saturday, February 12, 2011
2/12/2011
I was admitted back into the hospital on Wednesday and looks like I will be here for a few days still. I was only out of the hospital for 4 days before having to go back. Got really sick pretty quick and realized more was going to be needing done.
The last admission I received a mediport for IV access since my body's veins had been abused and nurses were not able to find anymore to use. This admit they had to put a PICC in also because I need TPN and will need it once I'm discharged also. So they are getting me set up with a Home Health agency to come and due line care, lab draws, and help with the TPN management.
I just can't wait to get back to work and the way it seems right now it will be a little while. Time stops for nobody and so the bills still keep coming due. Oh well, God has a plan for everything so I just need to trust Him (which is easier said than done)
Tuesday, February 08, 2011
Lucky - 2/7/11
Monday, February 07, 2011
Back in the swing of things.....
Today is/was kind of a sad day. I had to turn in my withdrawal notice to school. I had started back to college in January working towards getting into the PA program. I will not be able to keep up with class right now due to some of my physical issues. I was just discharged from the hospital on Saturday after being in a little over a week. With the stress of not being able to work right now and all that is going on physically, I realized it is just too much on my plate right now. I have more important things to focus on right now than worrying about the tests or papers and homework. I am sad about it though, because I was really excited and looking forward to starting back to school and becoming a PA. With God all things are possible, and if that is what he want me to do He will work it out when it's best.
There are a lot of question marks right now, but I'm glad that we have somebody we can turn to and can lean on. I may not have all the answers, the doctors may not have all the answers, but I am glad that there is somebody who sees the big picture and knows what is all going on and can give me the strength to go through it.
Hopefully this blog will be getting more frequent updates and posts. As you can see I changed some things, such as the title and the looks :)
Lucky - 1 yr old
She is just the sweetest dog ever. I had just gotten out of the hospital and hadn't seen her for over a week and was excited to see her, but I know how energetic she can be. So I was a little hesitant to see her and play with her after just getting home. Anyways, I went a left her out and I have never seen her act so calm and as gentle as she did. She calmly walked out of her house and came by me and followed me in the house. Usually as soon as we get in the house she takes off running and chasing/looking for the cat. But no, she just ever so calmly walks around the house and then comes back to me and just sits on my lap or just rests her paws on my arms and lets me pet her. It almost seemed as if she could sense I was sick and knew she shouldn't be jumping and carrying on around me. She is the BEST!!!!